Caregiver Support Groups
Alzheimer’s Foundation of America (AFA)
Virtual support groups, educational programs, and individual counseling sessions.
Link: https://alzfdn.org/support-groups/
General Website: https://alzfdn.org/
Alzheimer’s Association Support Groups
In-person and virtual caregiver support groups across Missouri and Illinois.
Link to Support Group Finder: https://www.alz.org/events/event_search?etid=4
Greater Missouri Chapter: https://www.alz.org/greatermissouri
St. Louis Bereavement Support Groups
Jennifer Frieswick, MSW, LCSW
Website: Home | Jennifer Frieswick, MSW, LCSW - Counseling Services
Phone: 636-344-6404
Address:
16100 Chesterfield Parkway W., Suite 202
Chesterfield, MO 63017
Jennifer is a Licensed Clinical Social Worker with over 20 years of experience in dementia care, caregiver support, adult day programs, hospice, home health, Alzheimer’s Association care consultations, and caregiver support group facilitation.
She offers:
• Counseling for caregivers and individuals newly diagnosed with dementia
• A monthly support program called Connections (for individuals diagnosed with early-onset dementia)
Association for Frontotemporal Degeneration (AFTD)
Support for caregivers of individuals with FTD.
Support Groups: https://www.theaftd.org/living-with-ftd/aftd-support-groups/
Regional Facilitator for Missouri/Southern Illinois: Sandy Cannon
Email: Sandracannon47@gmail.com
Project Present
Uses improvisation, communication, and creative arts programming to support caregivers, individuals living with dementia, and older adults.
Website: Project Present – PROJECT PRESENT provides engaging improv workshops to both individuals living with Alzheimer’s disease, dementia, memory loss, and their caregivers.
Space and Grace (6-week Virtual Caregiver Program)
A resilience-building, stress-alleviating support program for unpaid caregivers of individuals with chronic illness, cognitive disease, or terminal illness.
Website: Space & Grace — Heal Chicago
The program focuses on:
• Building caregiver resilience
• Stress reduction
• Community connection
• Practical tools for caregiving across the continuum
• Ensuring caregivers feel seen, heard, and supported
The Caregiver Club
The Caregiver Club is a St. Louis based nonprofit that supports people living with dementia and the caregivers who love them. The focus is on social connection, stress reduction, and creating safe, enjoyable ways for families to stay engaged in the community.
What they offer:
Free caregiver companion outings that allow caregivers and loved ones with dementia to enjoy museums, events, and activities together
A dementia friendly dining program that helps local restaurants create supportive environments for memory loss
A caregiver respite initiative that provides small grants or gifts to caregivers who need support
Practical caregiver tools and resources designed to reduce isolation and make outings easier
Why it matters:
The Caregiver Club gives caregivers a chance to breathe, feel supported, and stay connected. It also provides meaningful, dementia friendly engagement for the person living with memory loss.
Caregiver Action Network (CAN)
Caregiver Action Network is a national nonprofit (not Saint Louis specific) that supports family caregivers of all ages and all conditions, including dementia. It provides free education, emotional support, and practical tools to help caregivers manage stress and stay connected.
What they offer:
A free 24/7 caregiver help line for real time support and guidance
Online caregiver toolkits and disease specific education
Support for navigating burnout, stress, and care planning
Free virtual support groups and webinars
Resources for long distance caregivers and working caregivers
24/7 Caregiver Help Line:
1-855-227-3640
This line connects caregivers with trained staff who can provide emotional support, problem solving, and guidance at any hour.
Website: Caregiver Action Network: Resources for Family Caregivers